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Mandy’s Story Part 2 A true teaching story about infant depression
Honoring Mothers & Nurses
Mandy’s Story Part 1 A true teaching story about infant depression
Heartwork: Reflective Drawings and Coloring Conversations
Plain Language - Are we there yet?

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Mandy’s Story Part 2 A true teaching story about infant depression

Last time in this space I told Mandy’s Story about the depressed 8-month old
who transformed over the course of one week of simple everyday interactions.
 
The story illustrates the scientific work of Bowlby and Robertson on the stages
children move through when separated from their mothers due to hospitalization.
 
Mandy was well beyond the first stage in a child’s response to separation: Protest.
This stage is marked by wailing and sobbing in confusion, fear, grief at being
abandoned.
 
She was also beyond Stage 2: Despair. The child becomes more hopeless and
apathetic. She withdraws. Like Mandy. This going quiet is not settling in.
It is giving up and shutting down.
 
Mandy was well into Stage 3: Detachment (or Denial). She had suppressed all
emotion, including - maybe especially, feelings for her mother. She hardly
noticed when her mother left. She was so withdrawn that she sought no
mothering at all.  Now, i would recognize that as a sign of major psychological trauma.
 
There are many lessons in Mandy’s story. More on that next time. s
 
Reference
For a history of attachment theory and the stages of separation, plus a good
bibliography,  see Van Der Horst, FCP & Van Der Veer, R. (2009). Separation and Divergence:
The untold story of James Robertson’s and John Bowlby’s Theoretical Dispute on Mother-Child
Separation. Journal of the History of the Behavioral Sciences, Vol. 45(3), 236–252. Published
online in Wiley Interscience (www.interscience.wiley.com). DOI 10.1002/jhbs.20380 © 2009
Wiley Periodicals, Inc.
 
 
 
 

Plain Language - Are we there yet?

I twisted my knee. Before long it is too sore to ignore, so I check with a
physical therapist at the gym. He says he can fix it and that he is a
preferred provider on my insurance; his services will be fully covered.
So I visit him nine times over two months. My knee is better.
 
But my mind is boggled.
 
A week after the final scheduled PT session, I  get  a nine page so-called
“Explanation of Benefits”  from my health plan.  For each visit, there is
a not-a-bill on which I’m not-billed separately for Exercise Therapy,
Body Movement Therapy, and Muscle or Nerve Trai.
 
I’m not sure what that third item is, or if I had it, or why  the provider
billed $50, the plan allows $33.46, so I owe $33.46.  The Note says
“3024”.  So I hunt through the pages and find  a section labeled NOTES.
Here is Note 3024 (their caps): SEE THE “REHABILITATION SERVICES”
SECTION IN THE ALLOWANCE SCHEDULE OF YOUR CERTIFICATE OF
COVERAGE.” 
 
What?
 
Looking further, I see on the back of each page that if I disagree
with the payment decision, I can “submit a request for appeal
within 180 days of this notice”.  It should be in writing and include
copies of my medical records.
 
Who has their medical records? 
 
I can’t object to the decision since I can’t determine what the
procedure is. I don’t have a clue what the price should be. 
 
I give up and take the stack of papers to my husband; he’s a lawyer.
After a 15 minutes pouring over the pile,  we conclude that this
not-a-bill says the services, including the mystery procedure “Nerve Trai”,
are covered, at least partly,  but the insurer is not going to pay;
perhaps because while the individual deductible has been satisfied, 
the family deductible has not.  But the the employer says there is no
deductible on our plan... It seems the take home message is, “You might
get a bill.”  Hardly and EOB. More like a “Not-an- Explanation of No-Benefits.
 
This story would suggest that, despite the PhD and 30 years in health
services,  I have low health literacy. That is, I do not have the capacity
to process and understand information necessary to make appropriate
health decisions. Likewise for my husband the trial lawyer.
 
I’ve been impatient with the Plain Language crowd, thinking that surely
we all know about readability and jargon and all that by now. 
I am wrong. Really wrong.
 
 Keep at it Plain Language advocates!
 
 

Promoting Health Literacy with Beginnings Guides Part 14 Cultural Appropriateness


This is the last in our series using the SAM Suitability Assessment
of Materials to assess the suitability of Beginnings Guides to
pregnancy and parenting for low skilled readers who may be new
to the healthcare system.
 

For a good cultural fit match readers’  LLE
Leonard and Cici Doak, authors of the SAM,
concluded that most communication errors
in healthcare are caused by cultural gaps
between patients and providers,particularly
gaps in Logic, Language & Experience - LLE. 
For anyone in health communications
-that’s everyone in healthcare, it’s an acronym
worth remembering. 
 

Logic refers to a way of thinking about health, illness, treatment. 
Because of their specialized training, healthcare professionals have
a special way of thinking. For example, to a clinician who sees 30
sick people per day, illness is normal, another day at work, the usual
routine.  But to those 30 sick people, their illness  is exceptional, a
major source of physical, emotional, spiritual and financial stress for
a whole family, a reason to miss work and suspend the usual routine.
The clinician’s routine challenge may be the patient’s life changing
event. Consider, too differences between Western and Eastern medicine,
between medical specialties,  between medicine and public health,
between medicine and health promotion. A challenge for all health
communicators is to understand and match the learner’s logic about
your topic.

Language refers to a way of talking
about health, illness, treatment
Of course, logic and language overlap.
To a professional the problem
may be hypertension exacerbated by
obesity; to the patient the problem is
bad blood making it hard to walk up the
stairs. In the West, we describe epilepsy
as a disease - abnormalities in brain cells that cause seizures. Elsewhere,
epilepsy is described as  blessing - a sign that the person may be a shaman;
“the spirit catches you and you fall down”. Other language issues are less
subtle.
 
English is the language of the healthcare system.
If you are not proficient in English, you will struggle
at every level. And even if you are, you may still
struggle when simple English terms like stool and screen,
minor and routine take on a whole new medical meaning.
Or when simple concepts like walking  and pus or go home
take on a whole new vocabulary like ambulation and
discharge.
 
Latin and Greek are the language of medicine.
Terms are long and technical, so a natural short hand
emerges. As public relations director for a hospital that
specializes in heart surgery, I encountered more than
one family who objected to hearing staff refer their loved one as “the cabbage
in 206”. They were using shorthand for coronary artery bypass, thinking and
talking about the patient as his procedure and location.
 
Experience refers to participation in events as a basis of knowledge
A clinician lives in the hospital or clinic. S/he is intimately familiar with
the technology. S/he is in charge and in control. Everything is organized
for his or her convenience and efficiency. His or her status comes from
specialized knowledge.  In many cases, the patient has no experience
and very limited knowledge. That means no basis on which to judge
quality, weigh options, or interpret instructions. At that same hospital,
two patients who had open heart surgery by the same surgeon on the
same day were re-admitted two weeks later. Their doctor had told 
them to “take it easy.”  Both complied. One ran 3 miles instead of
his usual 5. The other never got off the couch.

Who is responsible for bridging the gap?
Federal, state and local laws, Medicare and Medicaid regulations,
and accrediting bodies clearly state it is the healthcare providers’
duty to communicate in a way the patient and family can understand.
SAM says Superior health education materials match the readers LLE
and present images and examples that are realistic and and positive.



Beginnings Guides are intended for a broad
national audience. It’s intent is to be as
culture-neutral as possible. We chose cover
art by Laurel Burch in which our testers saw
whatever was important to them. 






Last words on SAM: Only readers know for sure
SAM is an at-your-desk review. It cannot tell you that your information
is easy to understand and use.  Only the intended learners can tell you
that they learn easily from your document. SAM helps you get your
materials to the point where they are ready for Reader Verification
Interviews. More on that next time.

Promoting Health Literacy with Beginnings Guides Part 10: Layout

In this Part 10 of our series using the SAM - Suitability Assessment of Materials
- to evaluate Beginnings Guides, we address layout, the architecture of the page.
Like the architecture of a building, layout makes a page inviting or intimidating,
easy or physically demanding to navigate, memorable or nondescript.  SAM names
eight factors that substantially influence the suitability of health education
materials by making the process of reading painless or not. We will take them in
order. But first, I will add one essential item that SAM leaves out and that all page
design should respect

Reading gravity rules layout
Reading demands physical skill, concentration and time, all of which may be in
short supply. The information architect must ensure that none of the reader’s
effort and time are wasted, or worse, sacrificed to design.
 
We read from the top left corner of the page and work our way across and down;
left to right and back again to the bottom right corner.  Page design should facilitate
this efficient pattern and avoid disturbing reading rhythm.  In testing, on average
67 percent of readers showed good comprehension of information that complied
with reading gravity compared to 32 percent of readers of the same information
on pages that required them to work against reading gravity. Learn more and see
an illustration here.
 
Reading gravity explains many of the suitability factors for layout.
 
Position illustrations adjacent to related text.
SAM says photos or other graphics should be placed adjacent to the text that they
explain. Ideally the text is to the left of the graphic (so you read it, then see the
explanatory graphic)  and a caption is immediately below the graphic. Otherwise,
the illustration becomes a distraction and interrupts reading.
 
Make it easy to predict the flow of information
That means the content follows a logical sequence and is presented consistently.
For example, Beginnings Pregnancy Guide content is sequenced by gestational age
and the usual progress of pregnancy. Each of the six booklets uses the same section
heads and text addresses similar subjects in consistent order (e.g. Your Baby’s
Growth and Development). Warning Signs are always located on the back cover;
they change by stage of pregnancy; no searching is required.
 
Use visual cues to direct attention to key content        
For example, Beginnings Guides highlight key messages by displaying them in bold type 
in a box with 10% cyan( light blue) screen. Research suggests the light screen attracts the eye
without interfering with comprehension. A cell phone icon alerts the reader to a condition that
warrants a call to the doctor.

Keep the page clean
Simple design works best for readers. A cluttered page looks hard to read, and
most likely is.  Testers may say the over-designed page is more attractive, but
their comprehension will suffer.
 
Keep color in a supporting role
Color attracts the eye. Use it to lead the reader to key content. Or to lure the
eye up to the “fallow corner” at the upper right. Check to make sure the color
does not pull the eye against reading gravity like it does below.
 

Keep lines short - 30 to 50 characters and spaces
Remember the reading eye moves from left to right
and back again. At the end of the line, the eye returns
to its starting place and drops down to the next line.







Unless something is in the way. Then it has to search
for what is next,and be lost to the distraction.

Keep high contrast between type and paper.
When contrast is low, reading is difficult. For comprehension, black type on
white paper is far and away the best. More on colored type.

SAM says use non-gloss (matte) finish. Glossy paper carries a reflection which
can be distracting. However, other testing showed no difference in comprehension.
A coated stock repels fingerprints and is more durable.
 
Beginnings Guides get a Superior rating for complying with all these factors most
of the time.Look through the Pregnancy Guide.  SAM requires at least 5 to be present.
Material with fewer than three factors present or that just looks uninviting or hard to
read is Inadequate.

Promoting Health Literacy with Beginnings Guides Part 8 Lists & Charts

This segment continues our Suitability Assessment of Beginnings Guides using
the SAM instrument. It will complete the review of graphic elements begun in
Part 6 looking at cover graphicsand continued in Part 7 on illustrations and
captions. Today we consider lists, tables, charts and forms.
 
Lists can facilitate learning if they engage the reader to interact with the
information, make choices, and take action.  To meet this goal, the purpose
of the list must be made immediately clear through a headline or subhead
(see Road Signs) and brief instructions, as needed.
 
Example: Beginnings Pregnancy Guide (Page 65) includes a list of what to
take to the hospital or birthing center for childbirth. This is important
content to increase confidence and reduce anxiety,  especially for the
many women for whom childbirth is their first hospital experience.  
“Pack you bag” is a clear simple headline that clarifies the purpose of the
list. Two short introductory sentences tell when to pack and indicate the
list includes “all you will need.”  Check boxes are included to encourage
interaction.  The list is broken up with a subhead: “Pack for baby”, 
indicating the next appropriate action.
 
Provide instructions step-by-step
Explanations and directions are essential.  When presenting how-to
information, a bulleted list is easier and quicker to read and use than
a paragraph.  An example clarifies the instruction and instills confidence.
When preparing instructions, think through who will use the information
and how will they use it. Where are they likely to be when the want and
need the information. What might they be doing? Who might be with
them? What might get in the way? What might be confusing?  What format
will be most accessible? Focus on what-to-do. Be specific. Omit all
reference to what not to do (it is equivalent to static).
 
Example: Every pregnant woman wonders how she will know she is in labor
and  what to do when labor begins.  Beginnings Pregnancy Guide (page 72-73 )
presents step-by-step instructions under the headline “Are you in labor? Walk
to find out.”  Steps are numbered and presented in logical order: 1.Notice
contractions. 2. Walk  3. Time your contractions. 4. Call your doctor. Key
information is highlighted: “True labor contractions get longer, stronger
and closer together” . Instructions for calling include who to call, when to
call, what questions to anticipate, what to say, what if you get an answering
service, what if you cannot call; and finally, what to expect at the hospital. 
A photo shows a woman walking with hands on pregnant belly, noticing her
contractions.
 
Test essential instructions with a few representative learners with no prior
experience and little knowledge of your topic. Invite them to read your
instructions and tell, or better show you what they would do.  You will find
out quickly if the directions are too brief to use the graphic or follow  the
directions independently in likely circumstances. For Beginnings,our standard
is that the learner can find and follow the necessary instructions in the middle
of the night while throwing up.
 
Beginnings gets a Superior rating on the SAM for providing step-by-step
directions with examples that build self-efficacy. Graphics--lists, charts,
tables, forms-- presented without explanations are not suitable in health
education materials.
 
NEXT: Typography: type sizes, fonts, caps, color

Hospital medical staff reflects on health literacy

I had an  extraordinary hour- long conversation with about 35 medical residents
and attendings in an inner city teaching hospital last week.  I was invited to
present not-a-lecture on health literacy at their Grand Rounds*.  I met them in
their beautiful auditorium, which was elaborately equipped and designed for
lectures.
 
I decided to model what I teach. I took on the role of a home visitor. I resolved
to empower this “family” to move toward their best possible desired outcome
by asking reflective questions that would lead them to formulate their response
to health literacy in their institution and their practices. As home visitors point
out, this is scary; who knows what might happen?
 
I set my intention to be fully present with them, especially if things got dicey.
I reminded myself  to avoid “duct tape moments”.  Those happen when a visitor
needs duct tape on her mouth to resist giving advice, answering questions families
can answer themselves,  or telling them what to do. 
 
Thinking together
I told the physicians I would like to engage them in a reflective conversation.
The intent of the discussion would be to think together about what health literacy
means to them, their hospital, and their patients; about how would they know if
they were addressing health literacy thoroughly and well;  what's supporting them
and what's in the way or missing. By the end of the hour, if we were good, they
would name action steps that they are willing and able to take next week. They
were game.
 
One ‘burning question” from the group was What IS health literacy? So we started
with the story  of my Dad’s fall in the driveway last summer and my family’s
experience with him in  the ER and the hospital (not their hospital). I asked them
to listen for three perspectives of health literacy. 1) “Low health literacy”  as
clinically defined (inability to understand (read) basic information needed to make
health decisions); 2) health literacy as a personal and community asset that people
use to manage their health and healthcare and to build healthy communities; and
3) “hyper health literacy” - a term I coined to describe extreme levels of medical
knowledge and familiarity with healthcare documents which can leave health
professionals unable to communicate effectively with those outside the professions.
Doctors feel disrespected and unappreciated, too
 
The physicians were engaged, participative, thoughtful, reflective, and at times,
defensive. Generally a tough, stressed, brilliant group. It was not an easy
conversation. The doctors revealed feeling unappreciated. “They treat us like
waiters. They say, ‘I want this and this and that,” one attending said. “The
respect is gone,” said another. 
 
Some thought my dad had low health literacy and probably could not read well
since he did not know if he had a kyphoplasty* and did not know whether his
testosterone and prostrate had been checked. (He’s an avid reader - but not
of medical journals)  A few defended the doctor for asking Dad to repeat what
happened, although he had told the story many times already that day, his
injuries made it difficult to talk, he was on a pain cocktail, and it was recorded
in the chart, which the doctor did not read.  “We hear something new each time,
she said.”  Fair enough. How could you do it differently to save the patient some
of the difficulty and save yourself some time?
 
The Chief Resident chided me for not being more assertive. He said when the
doctor burst into the room late at night, woke us up, pointed at me and asked
Dad, “Who is she and what is her relationship?”, I could have stood up and asked
him who he was and what was he doing there. Good point. It reminded me of
quote attributed to Melvin Belsky, M.D: It’s not enough for the doctor to stop
playing God, you have to get off your knees. Next time.
 
What do you want and how will you know you’ve got it?
The doctors said they would know they are addressing health literacy fully and
well when patients are more compliant; and they acknowledged that an informed
patient might reasonably choose not to comply. Another sign: patients would ask
more questions. Good one.
 
Things supporting them in addressing health literacy were good training and
good policies. In the way, no surprise, was limited time with patients. More
troubling was some attitudes about patients.  A young woman resident said,
"they are just irresponsible, you give them info and they leave it on the bed". 
The group suggested several reasons why that might happen - they thought
they were going to get the same information from the pharmacist; they were
overwhelmed with info and instructions; no one discussed the information and
its importance with them.  One physician complained that his patients search
the Internet and come in with information. He considered that a time consuming
problem, rather than a sign of an engaged patient,
 
Moving to Action
The reflection lead the doctors to name steps they will take in the next week to
address health literacy. For example, instead of asking the patient to repeat their
story for each provider, they might read the notes and say  something like "I
understand this is what happened... “ and ask for specifics as needed.  At discharge
they might talk with the patient about how they will apply instructions to cope and
recover at home. They might encourage patients with a new diagnosis to make a list
of questions for the follow-up visit, and then be sure to ask them for it.  A simple
suggestion was to look the patient in the eye when talking with them. My best lecture
could not have generated this collaborative action planning.
 
The Power of Reflection
This conversation demonstrated the power of reflection and reflective questions
to engage people, bring them to their own solutions, and move them to actions that
they are willing and able to take. These doctors showed that they are response-able
for health literacy in their institution.  Hear me applauding. 
 
Notes & Reference
The reflective process described here is part of TED* - The Empowerment Dynamic
described by David Emerald. Visit powerofted.com/. Order the book The Power of
TED* or the new TED* and Diabetes. s
 
*Kyphoplasty is a surgical procedure designed to stop the pain caused by a spinal fracture

Promoting Health Literacy with Beginnings Guides Part 5: Road Signs


This continues our discussion of what makes materials easier or harder to read,
and more important, to use.  Our discussion guide is the SAM Suitability Assessment
of Materials. We are using the instrument to assess the suitability ofBeginnings
Guides for promoting maternal health literacy. This Part 5 wraps up discussion of
factors that determine the literacy demand of information: readability,writing style
and sentence construction, vocabulary, and today, advance organizers, or road signs.
 
Road signs reduce anxiety, aid learning
Working through information on a tough subject is like driving a rental car in unfamiliar
territory. You need road signs to know where you are now, and what’s ahead. Without
them, it’s easy to feel anxious, get confused and go a long way in the wrong direction.
Road signs enable drivers and readers to more easily find what they are looking for, and
arrive there focused and prepared.
 
Road signs in information -- on paper or on screen -- are headlines and subheads. They
alert the reader to expect what’s coming next and prepare her to think about (process
and understand)  the announced topic.  Without good subheads, the reader is likely to
bypass the information or miss the point.  
 
Subheads break up a sea of type
A text-heavy page can be intimidating and discouraging to anyone, and especially those
unaccustomed to reading by learning. Judicious use of subheads, in bold type, make a
page look more readable, an essential first step toward being read.
 
A good easy-to-read sentences contain one thought. An easy to read paragraph contains
two or three thoughts about the same topic. A subhead announces what is coming in
the next one to three paragraphs. 
 
Put a verb in it. A good subhead is more than a label. It should be a short basic sentence.
You can tell your subheads are useful if, when the reader takes in  only the headline
and subheads on a page, she gets the most important points. Sometimes you will need
levels of heads and subheads. Note that this section starts with a subhead, in bold type,
on its own line, with no punctuation. Then this paragraph starts with a secondary subhead.
The topic is still  subheads, but  now we are talking about a different aspect of subheads.
The second-level subhead is in bold type, but inline with the text and using a period to
separate it from the text.
 
Be consistent. On the road, drivers expect freeway signs to look different from state
highway signs and local street signs.   If they were inconsistent they would be distracting,
less informative, harder to learn from. Navigating through a page is equally aided by
consistency.
 
SAM says at least half of topics must have a road sign.   Beginnings Guides gets a Superior
rating since nearly all topics are announced just before the reader gets to them. 
 
For example, take a look at the Infant Care Guide in Book 6 of the Beginnings Pregnancy
Guide. Starting on p 86, the text leads the parent/reader through an exploration of their
new baby’s body.  The previous paragraphs’ subheads are “Get to know your baby” and
“Do not give Baby your cold”. So now the reader understands why she would explore the
baby’s body and, we hope, she has washed her hands, and is ready for the next section:
“Explore Baby’s body”.
 
Then, uh-oh, a label for a subhead. In this case the label functions on its own to tell
parents where they are in the exploration. Body parts are labeled consistently and 
the discussion moves logically from head to toe. Second level subheads are sentences
that highlight things to notice. Under “Eyes”,  the second level subheads are “Baby
may have blood spots”, “Baby might look cross-eyed”, “Baby may cry without tears”
and “Yellowish discharge from the corner of the eyes is normal”.  Each of these
announces brief information about something that mothers said they worry or wonder
about.
 
To make information easier to read, lead your reader through the text with good
subheads.

Next: A new section on graphics starts with the Cover

Promoting Health Literacy with Beginnings Guides Part 3: Writing Style & Sentence Construction


We are using the SAM -Suitability Assessment of Materials to assess the suitability
of Beginnings Guides to promote maternal health literacy. So the Guides need to
fit the audience, US pregnant women including those with low resources and
limited literacy, and to facilitate use of health information and services. In Part
1, we covered factors related to content. Part2 addressed readability. This Part
3 addresses two additional factors that determine the literacy demand of information,
writing style and sentence construction.
 
Writing Style is Conversational
Easy-to-use health information uses a conversational tone. Read aloud the information
you are reviewing  It should sound like something you would actually say to a person
sitting with you. Some clinicians may pan a conversational style as “unscientific” or
“unprofessional”, a reflection of professional training that rewards multisyllabic latinized
terms in long  complex sentences like this one as demonstration of deep knowledge.
But that is not the point here.
 
The point is to make the information easy to understand, personalize, and apply in
real life. Conversational tone is familiar and expected, so quickly grasped and not
intimidating. Rather it invites reflection and interaction.
 
Conversation nearly always uses the active voice: “ Jason hit the ball” is active. I can see
the action in my mind’s eye.  “The ball was hit” is passive; it creates an incomplete mental
picture. It does not engage the reader.
 
Conversation uses short simple sentences, and sometimes incomplete sentences. No
embedded information. In the first paragraph above, the third sentence intentionally
contains multiple phases and embeds mostly irrelevant information about professional
training demonstrating that long involved sentences and extraneous facts slow reading
and reduce comprehension. So instead of  “Patients are advised to take vitamins daily”;
say it the regular way: “Take your vitamins every day”.
 
Beginnings Guides get a Superior rating for using conversational style and simple
sentences throughout. Take a look.
Sentence Construction: Context first
The way the sentence is built makes a big difference in comprehension. Readers recall
the last thing they read, that is, the end of the sentence. Starting with what the reader
already knows, provides context and increases understanding.
 
Start with the context - the part the reader already knows: “While you are pregnant....”;
end with new information: “...your uterus is big enough to hold the baby. Right after
birth, it shrinks to the size of a grapefruit.” (Beginnings Pregnancy Guide Book 6 page 77)
If I state the new information first, the reader is likely to miss or forget it.
 
SAM gives an Adequate rating to materials that present the context first half the time.
Beginnings Guides get a Superior rating for consistently providing context before new
information.
 
Next: Vocabulary & Road Signs

Covering Circumcision* for All: Poor use of healthcare $

*  surgical removal of some, or all, of the foreskin (or prepuce) from the penis; the most
common surgical procedure in the US.
 
The American Academy of Pediatrics published a new policy statement on circumcision
this week In Pediatrics.  If you just read the abstract and the headlines, this jumps out:
Evaluation of current evidence indicates that the health benefits of newborn male
circumcision outweigh the risks and that the procedure’s benefits justify access to this
procedure for families who choose it.  In other words, health plans should cover circumcision.
Private insurance typically covers circumcision, so we’re talking about Medicaid, which covers
41% of births.
 
Circumcision costs $400-600. I have not heard parents clamoring for this service. Have you?
In fact fewer parents have been choosing circumcision. Reported US rates:

1965: 85%,
2006: 56%,
2009 33%. 
 
The Task Force strongly recommends the development of educational materials for providers
to enhance practitioners’ competency in discussing circumcision’s benefits and risks with
parents.  Let’s exercise some critical health literacy skills to consider the content of such
discussions. (How to present the content is another discussion)
 
The Policy Statement refers readers to the Technical Report but there is no bibliography or
list of studies considered. The report simply mentions prevention of urinary tract infections,
acquisition of HIV, transmission of some sexually transmitted infections, and penile cancer. 
Let’s look at three of these:
 
Urinary tract infections (UTI) are rare, usually limited to the first year of life (usually the first
month for boys), much more common in girls (but no circumcision is recommended for girls).
While it is may be correct to say that UTIs are 10 times more common in uncircumcised boys,
that is not informative and is misleading. The numbers are tiny; 0.1% - one tenth of one percent
or one in one thousand  circumcised baby boys get a UTI vs. 1.1% of uncircumcised boys. So the
best possible preventive effect is a 1% reduction in risk.  One study estimates it would take 195
circumcisions (about $10,000) to prevent one urinary tract infection, which would be readily
treated with antibiotics. hmmm...
 
HIV  The World Health Organization declared three years ago that circumcision should be part of
any strategy to prevent HIV infection in men in parts of the world where less than 20 percent of
boys are circumcised.  Notably, there are six African countries where men are more likely to be
HIV+ if they've been circumcised.  On the other hand, Scientific American reports 3 randomized
trials in different settings consistently showed  a 55 to 65% reduction in new HIV infections among
newly circumcised African adult males. However, that conclusion relies on the (big) assumption
that all the subjects in different countries, cultures and religions had similar sexual practices; 
and controversy remains over how circumcision protects. It seems logical that if circumcision
was that effective against HIV, the epidemic could not survive as it has in the US.  Also worth
asking: Why does uncircumcised Europe have lower HIV and STD rates than more circumcised
USA? hmmm...

While the policy is not about women, it seems worth mentioning that a randomized controlled
trial into male-to-female transmission showed women were  54% more likely to be infected by
a circumcised man than by an “intact” man.  Circumcised or not, you still have to use a condom!

Penile cancer is rare, even among uncircumcised men. 1570 new cases are expected in 2012,
and 310 deaths. Risks appear a bit lower for men circumcised in childhood and a bit higher
for those circumcised as adults. hmmmm

The American Cancer Society concludes:  In the end, decisions about circumcision are highly
personal and depend more on social and religious factors than on medical evidence.
This is essentially what AAP said; the policy is about covering the cost through health insurance
coverage.

It seems to me this policy presents nothing new for practice, but shores up the industry built
up around circumcision and now waning as fewer parents elect circumcision. That money
would be better spent on primary care for mothers.


Next time.  What to tell Parents?

Beginnings Guides in the Social Media

We’ve gone social!  We started Tweeting in January 2011.  We’re also on 
Facebook and LinkedIn. Most of the action on our topics, pregnancy, 
parenting and health literacy is on Twitter. Social media allows us to
monitor and contribute to related online discourse and resources. 
Beginnings WebMother Simone Snyder follows 1490 tweeters to keep
us up to the minute on the latest developments in several fields!
 
Today over 260 people and organizations follow @BeginningsGuide, and they
have a combined following of over 100,000. An additional 190+ follow
us on @HealthLitPromo. Following us means you receive our
posts directly by phone or email. You can also just check in at your
convenience.
 
I am happily surprised by the range of interest. Beginnings followers
include individual parents and grandparents, physicians, nurses, nutritionists,
SIDS specialists, injury prevention experts, health coaches, child advocates,
nine March of Dimes programs around the country, several United Ways and
Head Starts, literacy groups in the US and Canada, child care organizations
and women’s clinics.  Major organizations tuned in to our work include the
Maternal Child Health Bureau, CityMatCH, American Association of Maternal
Child Health Programs, Early Intervention Family Alliance, Child Health USA,
Tulane MCH, HelpMeGrow, Text4baby.   
 
How to follow us and participate in the conversation

You can expect 10-15 quality posts a week on topics ranging from Health
Literacy, Maternal Child Health, to tips for home visitors and expecting parents.

Twitter
To set up an account click here.
To follow Beginnings Guides click here or search for @BeginningsGuide.
To follow The Center for Health Literacy Promotion click here or search for
@HealthLitPromo.

Facebook
To set up an account click here.
To Like Beginnings Guides click here or search for Beginnings Guides.
To Like The Center for Health Literacy Promotion click here or search
for Center for Health Literacy Promotion.

Linked In
To set up an account click here.
To connect with Sandra Smith, PhD on LinkedIn click here.
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