"Patients prescribe E5 for sustainable health systems"
That's the tagline for a year-long patient-empowerment campaign launched in May by the European
Patients Forum, a coalition of organizations representing 150 million patients.
The Europeans, and the British, too, are looking at empowerment as a financial imperative. And we should, too.
Here's the problem: traditional healthcare systems were designed for infectious disease. Treatment fitting the
disease was prescribed and managed by professionals while patients complied and were cured or died. That
disease-focused model prevails but cannot sustain treatment of modern chronic conditions and aging populations
where treatment needs differ, treatment options are complex, patients self-manage and live decades with their conditions.
Health Literacy: an aspect of empowerment
The campaign defines patient empowerment as a process that helps people gain control over their own lives
and increases their capacity to act on issues that they themselves define as important.” Heath literacy is
considered an aspect of empowerment; it helps people gain control over their health and its determinants.
Information and resources are considered tools for empowerment. If we consider information and services as
tools for empowerment, how would we design them differently? What if the purpose of Informed Consent was
to empower patient choice rather than legally protect providers?
The five “Es” of Empowerment:
• Education: patients can make informed decisions about their health if they are able to access all the relevant information, in an easily understandable format.
• Expertise: patients self-manage their condition every day so they have a unique expertise on healthcare
which needs to be supported.
• Equality: patients need support to become equal partners with health professionals in the management of their condition.
• Experience: individual patients work with patient organizations to represent them, and channel their experience
and collective voice.
• Engagement: patients need to be involved in designing more effective healthcare for all, and in research to
deliver new and better treatments and services
Patient empowerment is a challenge for professionals, too
All the European stakeholders, including health professionals, agreed that a major barrier to achieving the five Es
is health professionals' attitudes. This is not surprising, and it's likely the same in the US. Special knowledge has
been a source of power and status for physicians for centuries. Health education curricula is defined but de-funded
in most schools so patients often lack essential knowledge. Skills to collaborate with less knowledgeable patients
as respected, equal partners with useful expertise are not developed in medical school. And there is never enough
Content analysis of US health literacy discourse suggests that here, as in Europe, professional attitudes inhibit
patient empowerment. The term empowerment is rarely mentioned. Patients are described' as "difficult",
"hard-to-reach" or "illiterate", with "inadequate" or "marginal" skills, who "fail" to comply or "just don't care".
If empowering the patient was part of every treatment plan, how would we describe patients differently?
What would we do differently?
Learn more about the Patient Empowerment Campaign
Follow them at @PatientsprescribE